Exploring the Neuropsychological Profile of Sturge-Weber Syndrome for Developing Tailored Rehabilitation.
This study aims to better understand how Sturge-Weber Syndrome (SWS) affects the brain's ability to think, learn, and process information. By identifying the specific strengths and challenges people with SWS face, researchers hope to create better, personalized support and learning plans for patients.
This study is open to both children (aged 2 and up) and adults who have a confirmed medical diagnosis of Sturge-Weber Syndrome. Participants must be able to complete assessments that measure thinking, memory, and behavioral skills.
Participants will complete a series of non-invasive tests to evaluate areas like memory, language, math skills, and emotional regulation. You will continue to receive your regular medical care throughout the process, and no experimental drugs or surgeries are involved.
The testing takes place in Rome, Italy, at IRCCS San Raffaele and Sapienza University. The study is currently recruiting new participants.
- 1This is an observational study, meaning it focuses on learning and assessment rather than testing a new medicine.
- 2The research helps doctors create personalized recommendations for school or work accommodations.
- 3Participation helps bridge a major knowledge gap about how SWS impacts cognitive health, especially for those without intellectual disabilities.
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